This year the San Raffaele Scientific Institute in Milano will host the First World Vitiligo Congress, between 23-24 September.
Some of the known speakers will be:
Prof. Raymond E. Boissy - involved in studying vitiligo and pigment cell biology.
University of Cincinnati College of Medicine, Cincinnati, OH - USA
Prof. Richard A. Spritz - VitGene consortium project, aimed to identify susceptibility genes for generalized vitiligo.
University of Colorado Health Sciences Center, Denver, CO - USA
There will be a Patient day, organized by ARIV, a patient-driven, non-profit organization based in Italy, representing the interest of those affected by vitiligo. Also patients and visitors can participate in the scientific sessions held on the 23rd and 24th for a registration fee of 168 € ( around 241 $)
Here is their official welcoming address:
Dear Friends,
It is a great honor and pleasure for me to chair the FIRST VITILIGO WORLD CONGRESS to be held on September 23-24, 2010 at the San Raffaele Scientific Institute in Milano.
Why at the San Raffaele Scientific Institute? Because, using the words of its Founder and President, Don Luigi Maria Verzé, “the San Raffaele complex focuses exclusively on every aspect of man: a blend of soma, intellect and spirit as far as duration and quality are concerned”, as well as because clinical and basic research are core activities of the Institute.
Why a congress dedicated solely to vitiligo? Because in spite of not being a rare disease, of being classified as a disease by the WHO (World Health Organisation) and of being one of the most psychologically devastating chronic skin diseases, with a major impact on both patients and their families, vitiligo is still today underrated and underestimated. Still today there are dermatologists who minimize the impact of the disease, who trivialize the condition or deceive patients’ expectations, leaving them vulnerable to therapies not proven effective, often found within the depths of Internet.
In view of the fact that these last ten years have witnessed a growing interest for research and an improved understanding of the mechanisms regulating the disease, of its genetic susceptibility and of the role played by autoimmunity, this highly intense conference - the Faculty of which is made up by the most eminent experts in the field - sets itself the goal of becoming an ideal occasion for an innovative and in-depth analysis of vitiligo.
The Congress is going to focus on recent developments in our understanding of the disease, touching on such different research areas as genetics, endocrinology, immunology, photobiology and psychology. Old and new therapeutic approaches for vitiligo are going to be a major issue for debate.
With the hope that each one of You would make his own contribution to this Congress I send you my best regards,
Prof. Santo Raffaele Mercuri
The official conference website is http://www.vwc2010.com
Ms. K. Ranjani Devi
said:
 |
... Inernational Conference on Vitiligo is going to be more benificial to those suffering from the disease and their families. Actually there two types of the disease. One is stable (stopped growing for years and the other is growing bit by bit inspite of treatment. If the patients suffering from both vitiligo and other Autoimmune diseases like Multiplesclerosis what should be the right course of treatment. For stable vitiligo surgery if advised will it be safe if the patient is suffering from multiplesclerosis which is an autoimmunedisease. These things need to be addressed in the deliberations in the 2010 conference. With Warm Regards and Best Wishes to the Scientists and organisers of the Meet. K. Brahmam, (Retd. research (earth science) Officer.) |
Nero Gulmino
said:
 |
... As a sufferer of vitiligo for over 35 years I am extremely excited to hear of a World Congress devoted to this disease and agree that this disease is very much under rated in the effect it can have on normal living. A definitive cure would be truly miraculous for all sufferers world wide and I am sure I speak on behalf of many other sufferers that I wish you all the sincerest of best wishes and may the congress be the beginning of finding out more about this disease and what causes it and how it can be cured and or prevented. N. Gulmino (Adelaide - Australia) |
dinesh kumar
said:
 |
... i m doing a project on vitiligo & understood that, vitiligo is a kind of disease which indirectly effecting the brain & directly effecting the skin to be extremely white on or every part. major drawback is we don't know it etiology and more over effective drugs are no there in the market. thought its biochemistry important to me, i thoroughly studied and came to an understanding that an enzyme "4alpha-hydroxy-tetrahydropterin dehydratase is deficient in vitiligo patients, which recycles 6tetrahydrobioptiren. i found that thioredoxin, which can take the place of 4alpha-hydroxy-tetrahydropteren dehydratase. and also pseudocatalase, psolarense many other. i want the biochemistry of thioredoxin so that i may synthesize a drug against vitiligo. |
Sufferer
said:
 |
... i sincerely hope with the minds of the researchers and with their individual higher powers, a cure will be found! thank you, thank you, thank you |
Sufferer
said:
 |
... I have started a project on Vitiligo Directory (http://www.vitiligo.biz). This is the only vitiligo directory. Vitiligo.biz |
A.Rahman
said:
 |
... As I am suffering from Vitiligo for over 20 years. I truly hope from the researcher to come up with some good result...And thank you...thank you ..thank you for everyone trying to fined. More about this disease and cure it. Thanks again, ARahman Sanabani |
s bhuvana
said:
 |
... Iam suffereing from this vitiligo for the past 17 years. i got after delivering my second daughter. i tried many medicines but in vain. i hope the researchers come out with correct medicine; i hardly open my mail box; so i only request anybody who comes across cure for this pls inform me |
Jalal Uddin Akonda
said:
 |
... My son, 7 yrs affected by vitilligo. I am really very up set by seeing that diseases. He is only 7 yrs but its increasing so rapidly makes me woried and crying. Could anybody help in right way that can cure it . |
Celia Prat
said:
 |
... I suffer of vitiligo for over 25 years and I have never found a effective treatment until now. I would like to know about any new effective treatment that you can get after this Congres. Thank you very much. |
